Self-Modified Clothing May Not Be the Only Option: Introducing PATTI + RICKY

same pair of running pants with scissors on them, but this time with the pant leg cut

I’m used to making it work when it comes to clothing and shoes, and I think there’s a lot to be said for that ability to adjust for your environment. That said, living in a world intended for people with 2 biological legs & feet sometimes leads to a little bit of frustration. For example, …

There’s No “Right” or “Wrong” with Fibular Hemimelia – Interview with Mariale

Shigue in the pool wearing his external fixator

For this blog, I interviewed Mariale, who is the mother of a 6-year-old boy who was born with fibular hemimelia (FH), which is the same diagnosis I was born with.  Mariale and her husband chose the leg lengthening process for their son rather than amputating (as my parents did), and I wanted to help share …